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portada Care of family members of children with sickle cell disease. Care of family members of children hospitalized for sickle cell disease
Type
Physical Book
Year
2025
Language
English
Pages
52
Format
Paperback
Dimensions
22.00 x 15.00 cm
ISBN13
9786200738103

Care of family members of children with sickle cell disease. Care of family members of children hospitalized for sickle cell disease

Lidyane Rodrigues Oliveira Santos;Silvana Santiago;Grazielle Silva (Author) · Our Knowledge Publishing · Paperback

Care of family members of children with sickle cell disease. Care of family members of children hospitalized for sickle cell disease - Lidyane Rodrigues Oliveira Santos;Silvana Santiago;Grazielle Silva

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Synopsis "Care of family members of children with sickle cell disease. Care of family members of children hospitalized for sickle cell disease"

Sickle cell disease is a genetic disorder characterized by a genetically determined alteration in hemoglobin production that occurs in the hemoglobin (Hb) molecule, where abnormal Hb S is produced instead of normal Hb A. Clinical manifestations include painful crises, acute chest syndrome, stroke, splenic changes, aplastic crisis, leg ulcers, osteoarticular, hepatobiliary, and ocular manifestations, renal syndrome, cardiovascular complications, and infections. In Brazil, it is considered a public health problem, as it affects a significant portion of the Brazilian population of African descent. Advances in the treatment of the disease and the consequent improvement in patient survival are intrinsically linked to how the family is welcomed and guided from the moment of diagnosis. Given the above, the study aimed to describe how care for children hospitalized for sickle cell disease is provided by family members and to understand how nursing contributes to the promotion of care for children hospitalized for sickle cell disease from the perspective of family members.

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